| | MAKING HEALTH DATA AVAILABLE FOR RESEARCH. THE NEXT STEPS | The first new expert meeting on making health data available focused on FAIR principles, the added value of collecting FAIR data, and the various methods and standards to achieve this. If you are interested in the discussion and concrete suggestions for tools and standards to FAIRify data at the source: check this link to the full recording, the slides and a report. In the next online expert meeting on September 23rd. Sabine Siesling (IKNL) and Edwin Cuppen (Hartwig Medical Foundation) will present their experiences and the latest methods and standards to enable findability and linkage of your data. Register here |
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JOIN & SHARE YOUR PRACTICES ON PEDIATRIC BIOBANKING | BBMRI-ERIC and the Stakeholder Forum Patient Pillar are calling on pediatric & RD communities to engage in a network tackling pediatric biobanking and its ethical, legal, and societal challenges. Replies welcome until 30th September 2021. Read more |
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HOW DNTP IMPROVED PROCUREMENT OF TISSUE SAMPLES FOR RESEARCH | A new BBMRI.nl publication showcases the impact of efficient, consistent, and transparent tissue sample procurement on pathological research in the Netherlands. Read more. |
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JOIN US AT THE HEALTH-RI ACCELERATOR MEETING | Funding from the National Growth Fund powered Health-RI to accelerate the work on a national health data infrastructure. Health-RI is preparing to quickly take the necessary steps forward. This will festively kick off on October 5th at Jaarbeurs Media Plaza in Utrecht with all parties involved. Presentations from i.a. Marcel Levi (NWO), Constantijn van Oranje (Techleap), Mona Keijzer (EZK). The launch of a new initiative, "Uw gegevens redden levens" & COVID data program, that will showcase the added value of a health data infrastructure. See the full program, and be sure to register well in advance as seats are limited. We reserve the right to deny access if the number of registrations exceeds the capacity of the room. We will send out final confirmation of registration a week in advance of the meeting. PS. COVID-19 precautions: At the entrance, we will ask for a Corona admission ticket via the CoronaCheck app! We also ask that you do a self-test prior to the meeting to minimise the risk of infection. |
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