NBC’s Richard Engel and his wife, Mary, lost their beloved son Henry to a rare genetic neurological disorder called Rett syndrome. Now they're helping Henry’s legacy live on in cutting edge research. "We have a vendetta against this syndrome and we want to cure it. We don't want any other child to lose their life." Mary Engel says.

April 13, 2023 | VIEW IN BROWSER

Parents

April 13, 2023 | VIEW IN BROWSER

Parents

Richard Engel on how son Henry’s legacy will aid search for cure

Richard Engel on how son Henry’s legacy will aid search for cure

NBC’s Richard Engel and his wife, Mary, lost their beloved son Henry to a rare genetic neurological disorder called Rett syndrome. Now they're helping Henry’s legacy live on in cutting edge research. "We have a vendetta against this syndrome and we want to cure it. We don't want any other child to lose their life." Mary Engel says.

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